We asked Dr. Mary Kasule, bioethicist and winner of a Wiley bursary to the 2016 World Congress of Bioethics, to pick her favorite articles from our bioethics journals. To read about her extensive bioethics career and hard work, please see this Q&A on the Philosopher’s Eye blog.
The nine articles below are free to access until July 31st. We hope that they will inform and inspire you in your own work.
From The Hastings Center Report:
When and Why Is Research without Consent Permissible? by Luke Gelinas, Alan Wertheimer, and Franklin G. Miller
Balancing Benefits and Risks of Immortal Data: Participants’ Views of Open Consent in the Personal Genome Project by Oscar A. Zarate, Julia Green Brody, Phil Brown, Monica D. Ramirez-Andreotta, Laura Perovich, and Jacob Matz
From Developing World Bioethics:
Managing Ethical Challenges to Mental Health Research in Post-Conflict Settings by Anna Chiumento, Muhammad Naseem Khan, Atif Rahman, and Lucy Frith
Prioritising Healthcare Workers for Ebola Treatment: Treating Those at Greatest Risk to Confer Greatest Benefit by Priya Satalkar, Bernice E. Elger, and David M. Shaw
To What did They Consent? Understanding Consent Among Low Literacy Participants in a Microbicide Feasibility Study in Mazabuka, Zambia by Esther Munalula-Nkandu, Paul Ndebele, Seter Siziya, and JC Munthali
[Re]considering Respect for Persons in a Globalizing World by Aasim I. Padela, Aisha Y. Malik, Farr Curlin, and Raymond De Vries
Are open-Label Placebos Ethical? Informed Consent and Ethical Equivocations by Charlotte Blease, Luana Colloca, and Ted J. Kaptchuk
Engaging Diverse Social and Cultural Worlds: Perspectives on Benefits in International Clinical Research From South African Communities by Olga Zvonareva, Nora Engel, Eleanor Ross, Ron Berghmans, Ames Dhai, and Anja Krumeich
Happy reading, and be sure to check back here later in the month for a post-conference interview with Dr. Mary Kasule, where we’ll ask her about her experience and how it will carry over into her future bioethics research and work in Botswana and beyond.